I know, I know I haven't written in awhile... been just enjoying life at the moment. So- My baby graduated 2 weeks ago from grade 8. Not sure HOW I feel about that! How am old enough to HAVE a kid that graduated grade 8?? I can't get over how much hes changed in the past year, esp. the past 6 months. I hardly recognize him. His voice is so low.. hes lost 72 lbs.. and is now 6 feet tall. sigh... they grow up so fast...he shocked us all by winning by receiving two awards- one for "dsbn student success" which is for the student that went beyond their expectations and showed respect, responsibility, academic improvement and all around achievement. he also won citizenship of the year!! We are so proud. Dean couldn't make his actual grad, it was on a monday. Have I mentioned lately i hate his job? :p
Devon won 3 firsts, 2 fourths and a 6th in the special olympics track and field in june. We also have him in baseball every wednesday night and seems to enjoy it. We are trialing a new med for anxiety and KNOCK ON WOOD but the past week he seems so much calmer. He still cant focus at all.. and his attention span is still non existent.. and nothing else has changed but calm is great! :p Hopefully he wont be waking me up anymore in the middle of the night to check ( and kill) spiders in the games room( wakes up from a dead sleep from either my bed or his to have me do this) - or freaking out over the slightest little thing...
Dean took russell to miami this week... it's been very QUIET here. I even managed to clean things in here I haven't had time for in awhile.. organized the basement.. did ALL the baseboards in the house.. shampooed the carpets..organised and cleaned my room...wiped down walls, railings, doorframes, even did russells bathroom including shower stall! I am on a roll! ;p I would love to tackle the loft in the garage however I dont feel like killing myself on the ladder while lifting heavy boxes..dean has said for a year now we will do it together.. but seriously.. when in the hell do we have time to do that crap?! lol I have so much stuff I could have one huge garage sale.. if only i could get it all together.. but thinking unless i advertise up the ass who is going to come to my little dead end street in the middle of nowhere? and the BOOKS I have omg.. and cook books too.. 3 large boxes of just those.. I would need a library just for the books I have.. and i donate them too.. so its not like I still have even books from LAST year.. this is just since maybe Christmas.. since the rbc took down their big book wall- buy one for a quarter- i havent given any away..which is a ton when i read 4-6 books a WEEK AND i go to the buy a box of books at the depot whenever its on too..anyone want books? come see me.. :)
Last week dean mics me and tells me he's heard that his boss has decided to take away all our benefits away.. needless to say I FREAKED! I spent 1/2 that night rebudgeting and figuring out how we are going to pay for 800 dollars worth of meds a month.. not to mention dentist.. chiro, massage therapy and everything else we use it for... when dean came home however the premium was still taken off his cheque and there was no mention to him at all about this.. i am desperately hoping its a rumour created by a certain asshole that was bored while driving and had nothing better to do than to create total chaos by telling 6 other drivers. Apparently said driver said that he heard from another driver that when he picked up his pay the day before there was a memo attached stating that all benefits were gone as of july 1st and in lieu of this andy was going to give the drivers stat holiday pay instead..hmm stat pay.. he should have been getting this for the past 13 years by law.. so how is THIS compensation anyway? however- there was NO memo in Deans pay as of tuesday.. and his bosses never mentioned a word of this and hes obviously spoken to them a ton of times in the mean time... cross your fingers that is was all contrived by said asshole...Its not like Dean wants to bring this to attention to his bosses and ASK.. gees they might think its a great idea! No use putting ideas in their heads. If his premium was deducted again this week AND no stat pay for july 1st was added we will know for sure.
Devon just got up.. wow he slept in today till 720! This is huge! :p Not sure what we are going to do today.. its was calling for rain.. i havent checked the forecast this morning yet..I DO know I want to finish shampooing the carpet in our bedroom... how exciting! I also have to follow up on a few phone calls from people that have yet to call me back.. also playing phone tag from the tourettes clinic.. I am trying to get devons and russells filles transfered over from there to dr. shapir's private office.. last appointment we were informed that shes no longer going to be working at the clinic and I really dont feel like starting over with another dr there.. i really like her.. shes down to earth, funny and is really thorough. But what a pain in the ass about the files.. so we will be seeing her now at her office on the corner of bloor and sherbourne.. no more china town for awhile i guess :( we were also told that that sick kids have said we have to wait A WHOLE YEAR before we get into their genetic counselling and hear all the results from the kids tests.. holy shit.. a lot can happen in a YEAR.. esp when we are concerned about devons diet so much,.. he should have been seeing a genetic nutrionist from day one! Not to mention to find out what exactly genetically is wrong...
we have to go to toronto tomorrow- to Dr Philpotts again- the muscular/skeletal dr for a follow up- not really sure what hes going to see any different.. devon hasnt gained any weight or height in well over 2 years..and still has absolutely now muscle tone..
we also found out that ibi and aba therapies are not going to happen.. for one hes too old for ANY funding.. ( it ends at 6) AND because he has more than one diagnosis.. he had to have the asd diagnosis years ago to qualify for anything.. also the ibi therapies from bethesda here are headed by DR Snyder.. the same dr ( and cdas clinic) that told us when he was three he was GIFTED and bipolar.. and they would have done their own set of evaluations to just to get in.. so why backtrack anyway? when they got it all wrong years ago.. we were also told that at age 8 he wont be really getting a lot out it.. he should have started it YEARS ago...the clinic in toronto has suggested we get involved in the Geneva centre in toronto.. like we want to drive to toronto 2-3 times a week...I really feel like my kids were cheated out of so much just because Niagara sucks so bad.
anyway- going finish my coffee and go start on that carpet so it has time to dry AND I have time to do something else later..
ttfn Su
Dean took russell to miami this week... it's been very QUIET here. I even managed to clean things in here I haven't had time for in awhile.. organized the basement.. did ALL the baseboards in the house.. shampooed the carpets..organised and cleaned my room...wiped down walls, railings, doorframes, even did russells bathroom including shower stall! I am on a roll! ;p I would love to tackle the loft in the garage however I dont feel like killing myself on the ladder while lifting heavy boxes..dean has said for a year now we will do it together.. but seriously.. when in the hell do we have time to do that crap?! lol I have so much stuff I could have one huge garage sale.. if only i could get it all together.. but thinking unless i advertise up the ass who is going to come to my little dead end street in the middle of nowhere? and the BOOKS I have omg.. and cook books too.. 3 large boxes of just those.. I would need a library just for the books I have.. and i donate them too.. so its not like I still have even books from LAST year.. this is just since maybe Christmas.. since the rbc took down their big book wall- buy one for a quarter- i havent given any away..which is a ton when i read 4-6 books a WEEK AND i go to the buy a box of books at the depot whenever its on too..anyone want books? come see me.. :)
Last week dean mics me and tells me he's heard that his boss has decided to take away all our benefits away.. needless to say I FREAKED! I spent 1/2 that night rebudgeting and figuring out how we are going to pay for 800 dollars worth of meds a month.. not to mention dentist.. chiro, massage therapy and everything else we use it for... when dean came home however the premium was still taken off his cheque and there was no mention to him at all about this.. i am desperately hoping its a rumour created by a certain asshole that was bored while driving and had nothing better to do than to create total chaos by telling 6 other drivers. Apparently said driver said that he heard from another driver that when he picked up his pay the day before there was a memo attached stating that all benefits were gone as of july 1st and in lieu of this andy was going to give the drivers stat holiday pay instead..hmm stat pay.. he should have been getting this for the past 13 years by law.. so how is THIS compensation anyway? however- there was NO memo in Deans pay as of tuesday.. and his bosses never mentioned a word of this and hes obviously spoken to them a ton of times in the mean time... cross your fingers that is was all contrived by said asshole...Its not like Dean wants to bring this to attention to his bosses and ASK.. gees they might think its a great idea! No use putting ideas in their heads. If his premium was deducted again this week AND no stat pay for july 1st was added we will know for sure.
Devon just got up.. wow he slept in today till 720! This is huge! :p Not sure what we are going to do today.. its was calling for rain.. i havent checked the forecast this morning yet..I DO know I want to finish shampooing the carpet in our bedroom... how exciting! I also have to follow up on a few phone calls from people that have yet to call me back.. also playing phone tag from the tourettes clinic.. I am trying to get devons and russells filles transfered over from there to dr. shapir's private office.. last appointment we were informed that shes no longer going to be working at the clinic and I really dont feel like starting over with another dr there.. i really like her.. shes down to earth, funny and is really thorough. But what a pain in the ass about the files.. so we will be seeing her now at her office on the corner of bloor and sherbourne.. no more china town for awhile i guess :( we were also told that that sick kids have said we have to wait A WHOLE YEAR before we get into their genetic counselling and hear all the results from the kids tests.. holy shit.. a lot can happen in a YEAR.. esp when we are concerned about devons diet so much,.. he should have been seeing a genetic nutrionist from day one! Not to mention to find out what exactly genetically is wrong...
we have to go to toronto tomorrow- to Dr Philpotts again- the muscular/skeletal dr for a follow up- not really sure what hes going to see any different.. devon hasnt gained any weight or height in well over 2 years..and still has absolutely now muscle tone..
we also found out that ibi and aba therapies are not going to happen.. for one hes too old for ANY funding.. ( it ends at 6) AND because he has more than one diagnosis.. he had to have the asd diagnosis years ago to qualify for anything.. also the ibi therapies from bethesda here are headed by DR Snyder.. the same dr ( and cdas clinic) that told us when he was three he was GIFTED and bipolar.. and they would have done their own set of evaluations to just to get in.. so why backtrack anyway? when they got it all wrong years ago.. we were also told that at age 8 he wont be really getting a lot out it.. he should have started it YEARS ago...the clinic in toronto has suggested we get involved in the Geneva centre in toronto.. like we want to drive to toronto 2-3 times a week...I really feel like my kids were cheated out of so much just because Niagara sucks so bad.
anyway- going finish my coffee and go start on that carpet so it has time to dry AND I have time to do something else later..
ttfn Su
