When you have an Autistic child....

When you have an autistic child


When you have an autistic child your time is not your own. You are a care giver 24 hours a day.

When you have an autistic child your whole world becomes a time table, Dr's, therapists, school meetings, and routine routine routine.


When you have an autistic child your entire life becomes ABOUT autism.. how to survive and cope and help your child ( and yourself) just get through a day.

When you have an autistic child, to say your life is unpredictable is an understatement, anything can change in a heart beat and plans are rarely made because of this.

When you have an autistic child you feel like you're living in a bubble, you can't escape and no one can get in.

When you have an autistic child you grieve a little everyday, for the future, friends lost and the ability to communicate and interact with your child.

When you have an autistic child no one wants to hear about your day, or understand the isolation you feel. No one wants to acknowledge that you have a child with an illness, they only think you're a bad parent, or dramatizing or how better they could handle things if they were in your shoes.

When you have an autistic child you are always on guard and are constantly trying to find ways of reducing all stress. Even a fun event can turn into a nightmare in a split second, sometimes it's just best to avoid things.

When you have an autistic child your close friends disappear, they don't have a clue what being a parent to an autistic child means.. you don't have a lot of time or energy for anything else and your reasons become excuses in their eyes.

When you have an autistic child no one seems to understand and everyone is full of advice and judgement.

When you have an autistic child you become a fighter, for your child, for compassion and a little understanding, for a 5 minute break.

When you have an autistic child you worry all the time. About school, about testing, about the future, about rages, about your other children, about your job and your relationships.

When you have an autistic child you want to shout from the roof tops.. My child is a human BEING and please accept him with patience and treat him with the respect he deserves!

I am the mother of an autistic child and if I could heal my child I would. Don't you think I want to? Don't you think my heart breaks every time I see my child not being able to cope? or have friends? or when he's rejected by his peers? or say what he wants to say? or get terrified and anxious over things we don't understand?

I am the mother of an autistic child and my life is not the same as yours. Please try and put yourself in my shoes just for a moment.

Suzanne Bilski


http://www.autismcanada.org/

http://www.fragilex.org/html/autism_and_fragile_x_syndrome.htm